Cotentin.  Maxine (13) suffers from a rare disease: she urgently needs bone marrow

Cotentin. Maxine (13) suffers from a rare disease: she urgently needs bone marrow

13-year-old Maxine urgently needs a compatible donor. (©DP)

and September 17, 2022the life of the Garner family, who live in Carentan-les-Marais (Manche), changed when they learned terrible news : Maxine, 13, has a autoimmune disease.

“We fell apart. She’s an athletic kid who’s never been sick, never had anything. I noticed she had bruises but she downplayed it, saying it was nothing. I insisted she do blood work test. »

Phil GarnerMaxine’s father is still in shock

Find donors quickly

The girl made up her mind. He will collect this sample on Saturday morning. Due to the extremely disturbing results, the lab cannot get in attending physiciantrigger an alert.

“In the afternoon we saw the gendarmes arrive at the house to tell us that we had to rush her to the University Hospital in Caen because she had only a tenth of her red blood cells left and nothing. white blood cells and platelets. We got the results later. »

Phil Garner

Maxine suffers from aplastic anemia, rare disease : the bone marrow no longer makes blood cells normally. “She doesn’t make it anymore because her body is destroying the cells that are supposed to make it,” her dad says. Phil Garner links the development of this disease to vaccination against human papillomavirus infections: “It’s the only thing she’s gotten lately. She’s had both doses for the past six months.’

Future firefighter

That girl is hospitalized more than a month Caen University Hospital. On Monday, October 17, she was placed in a sterile room. “She is overtired. He sleeps a lot. As soon as she moves her finger, she is exhausted. Despite this, he is solid on a psychic level. The “warrior” he is destined to become fireman.

The immunosuppressive treatment that will follow is experimental. “The doctor isn’t sure if it’s working. As it is, we risk losing it. That’s why you have to find a donor at all costs. »

Urgent need

Maxine urgently needs bone marrow. Her parents call for help. His elder sister who lives in USA is not compatible. “All our hopes were in it. Even harder:

“There are 39 million registered donors worldwide, but unfortunately there is no match. »

Phil Garner

Phil Garner originatesEuropean originhis wifeof Korean descent. “Because it is linked to genetic inheritance, there is a better chance of finding a compatible donor in that ethnicity, but it is not certain. »

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To be a donor, you must have between 18 and 35 years and register at national donor registry by responding to some health problems and complete your commitment by taking a saliva test, which will be returned in a postage-paid envelope. In 80% of cases, donation of bone marrow cells is done through blood sample.

“Bone marrow donation is nothing at all. »

Phil Garner

The Garner family’s hope is to find a compatible donor. In addition to his daughter’s specific case, Phil Garner is calling for mass registration on the biomedical agency’s donor registry: “Even if it doesn’t save Maxine’s life, it could save lives full of people. The more donors the better! »

Entries in the donor registry at www.dondemoelleosseuse.fr. The reference center of the biomedical agency for Manche, Orne and Calvados is at Caen University Hospital (07 61 59 98 80).

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